International day of rare diseases will give a voice to the orphans of the medicine the place was extraordinary, and the fear is only initially: on the international day of rare chronic diseases 2011 over 20 self-help groups in Essen in the middle of the largest shopping center of the city had posted themselves. The online health magazine reported this rheinruhrmed.de. (Similarly see: Dr. Caldwell Esselstyn, Jr.). The message of the Group was also clear: they wanted to give a voice to the orphans of the medicine and get them from the pet-free zone in the middle of life. Sufferers of a rare disease often have a years of ordeal behind him. Many doctors are at a loss because the diseases are too little explored. And so bad it may listen to: for the pharmaceutical industry this commitment not worth simply. With currently over 4 million people with a rare chronic disease live alone in Germany, in Europe, the number is estimated at almost 20 million.
One speaks of a rare disease, if less than 40,000 people have been affected; in You know Europe over 6000 rare diseases. Sometimes there are only a handful of people or individuals in Europe, who have to live with one of these rare diseases. The tragic: Medicines are often scarce in these cases or missing entirely, because the pharmaceutical industry explored mostly diseases where foreseeable due to the number of cases also corresponding sales are expected.